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My ?’s are obviously too hard for doctors so i’d like to ask the public on their thoughts?
i had a wc injury to both shoulders in 2005 it has interupted usage of arms and hands. Cannot even open a water bottle definitely no jars.. have problems with buttons and zippers. I can put my arms out in front of me..not for long but elevate to the ceiling ABSOLUTELY NO REACHING!! But i cannot put arms out to sides elevate and bring up which leads me to believe injury in rotator cuff or sac. Pain up and down right arm in a few nerves..believe ulnar and median damage (R ring, pinky and thumb) pain under elbow and behind elbow. Cannot do normal daily activities Been tested for carpal tunnel-negative. As the yrs have gone on pain has ran from shoulders to arms, hands, neck, back and hips. I am light headed, dizzy, lost coordination, forget how to spell easy words..n sometimes can’t put sentences together or slightly studder. ex: said to fiance “quiet ur cold” meant to say “ur car is so quiet” or btr yet i really need money so played cash tournament Texas hold’em..thought i saw a 6 on the board which would’ve given me a straight i bet 2400 on a 6 that wasn’t even there..it was a 9 im not dislexic (totally forgot how to spell it) Even my card game friends say somethings wrong..they know i don’t make mistakes like that! I’m a good player top of league..now i barely play cause it takes sooo much concentration for me. Pointless reading cause i forget what money jar texas lottery i read 5 minutes later. Anyway i get these headaches everyday and sometimes can last up to 14 days. Start from inflammation on r side of neck or from big muscle on r side that runs along r side of spine then up neck and goes over r side of cranium to r eyebrow. Also affects muscle or nerves around r ear, mandible and r side of neck to clavicle. It will cause hearing to be mumbled and painful, eye lids very puffy, hard swallow and soreness on right side of face. Sometimes i wake up so dizzy i can’t drive that day! All my glands are soooo swollen especially throughout neck..from chin to clavicle. Glands under arms, breasts, and groin area..very painful to touch. Im praying it’s not lymphatic system. And more of a symptom than an actual. October while working my 1 day a week (now) i itched something on my face it swelled became red and now i have a cyst under my eye that won’t go away. I also woke up one morning this february to the whole left side feeling like massive sun poisening. (No rash) I live in Jersey it’s winter! i believe was a symptom that produced temporal neuralgia..of course my doctor didn’t say anything except well it went away so don’t worry about it. I am very holistic and believe when there is any dis-ease in the body it will show u!!! My doctor’s have ran lyme test but they’re useless tests..not done by rhuema also trig fine so no diabetes..which we have family history of and failed kidneys along w/polyps of kidneys. He ran and E-sed rate which i guess is normal 1 mm/hr says should be <26 also ran ANA which even though i asked i still don't understand bc it takes me so long to comprehend now and by the time i walk out.. i forget.. i forget everything now.. it's horrible! So i don't understand my test no matter how many times i research ANTI-ds-DNA. Test Results say ANTI-dsDNA/ (category abnormal)= 14* see below..RF, QUANT. (category results) =<7, reference is <14IU/mL i thought it was measured in titer so y the units? then Smith, Sm/RNP, SSA, SSB all negative don't get it but he wants me to see rhuema. wc won't pay! also high LDL (category abnormal)=103HI ref: <100 (that's bc i didn't cook from august to jan bc it hurts too much) so i was eating prepared foods..YUCK!!! and my bilirubin is high (category abnormal) =1.1HI ref: 0.1-1.0 mg/dl. W/c dr dx'd me w/fibro..Which WE ALL KNOW does not mess with ANA's (Seriously is there any doctor with an education out there or can every1 graduate with a 75-80% correct answers, ugh!) i do have all the symptoms..but i also have all symptoms for lupus except butterfly rash..WHICH again we all know u don't have to have every symptom..just important ones like blood! Also have every symptom for RSD and all other Chronic Pain disorders that i've researched. so what's a girl to do ... just looking for some feedback on any of the above. BY THE WAY IT HAS TAKEN 2 HRS TO WRITE THIS SO ANY RESPONSE IS APPRECIATED, TY again!
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